Ed Price was born July 28, 1922 in New York City. He served as an Army Engineer in World War II, and graduated later from the Georgia Institute of Technology with a degree in industrial engineering. He worked for Proctor & Gamble for 37 years with assignments in Cuba, Mexico, Great Britain, Belgium, and Spain. He retired to Charleston, South Carolina, attracted by the opportunities to participate in his lifelong love of sailing and by the city's many other charms. He was first diagnosed with low grade prostate cancer in 1987 after a TURP. In 1993 a PSA of 4.7 prompted a biopsy that discovered Gleason grades 4+4, and it was at this time that he was first treated. He died of advanced prostate cancer on November 30, 2004 in Charleston.
In early 1995 Ed conceived of the idea of establishing a prostate problems email discussion list on the model of discussion lists that existed on the Prodigy internet service. He sought out Marianne Brousseau, whom he met through Prodigy and who had experience in managing a breast cancer discussion list, and asked her assistance. Marianne introduced him to Kevin Sinclair, who had technical expertise in email discussion list server software. These individuals and technical staff at St. Johns University accomplished the work necessary to establish the Prostate Problems Mailing List on the servers at St. Johns during June 1995. The list opened to outside subscribers during the first days of July.
During its first nine of years existence, a number of persons served as facilitators, but Ed Price was the one major constant around which the PPML formed. The success of the list owes a great deal to the many valuable contributions of its other facilitators and of its subscribers, but it was Ed's nine years of attentive concern that were particularly significant in making the list the wonderful resource that it is.
These were Ed's words in his resignation post to the PPML in August 2004:
Reluctantly the progression of my PCa has reached the point that I am forced to drop out as an Active Owner of the PPML, ACOR's designation for what early on we decided needed a less controlling or dominant identifier - Our choice - Facilitator. It was felt this better matched our desire for a friendly forum focused on learning about our unwelcome guest, it's diagnosis, treatment options and side effects that would help us make the best possible personal treatment decisions for our unique individual circumstances.
I have learned a lot of personal information that has been of great value to me since the start up in 1995 and I feel we have had considerable success in meeting the forum goals.
I will continue as a subscriber and hope to make the occasional constructive contribution.
The PPML will go on but with Charles Clausen continuing to do the busy work associated with managing the list and hopefully helping the PPML reach new heights of participation, support and service.
Best Wishes -
These are statements by PPML subscribers, and others who knew Ed:
When Ed withdrew from list management because of failing health, I joined many others in thanking him for the PPML, but I had another -- more personal -- reason to thank him. I joined the PPML in the first month of its existence, which was also the month of my dad's diagnosis. I've been a subscriber ever since. Ed was the first person to answer my newbie cry for help and information for my dad. His kind words soothed my fears, and made me feel less alone with responsibility of helping my dad find the right treatment for him.
I owe a great debt of thanks to Ed for his years of dedication to the PPML, and for his kindness to my family. He will be remembered as one who helped thousands without ever seeking any glory for himself. I never met Ed in person, but was in email contact with him frequently over the course of nine years. I thought of him as a friend, admired him greatly, and will miss him very much.
As one of the old Prodigy crew, I really am going to miss having Ed around. It is strange the respect and bonding one has over this electronic media, but the loss is just as great. Generous and kind are the thoughts that come to mind when I think about Ed.
He fought the 'good fight' for longer than some, and without ever a public complaint. He was a true gentleman, compassionate, and kind, as I've known him here, through his contributions/posts. Ed, you were truly a blessing to us and will be missed.
Rest in His Peace, Ed.
I never met Ed in person but we were on a first name basis. He was courteous almost to a fault, assisted me many times and corrected me in a nice way when I slipped outside the protocols of the mailing list. He was an asset and was one of those who guided me through my illness when I knew nothing. He educated me and is one of those I credit with giving me the info I needed to put my Pca in remission. We are the poorer for his loss. Ed, rest in peace.
Carl J. Silverstein
Ed Price was a tremendous, vigorous influence for good in the prostate cancer community. He was one of a few, far-sighted innovators who led the way to bring this community online. While the technology, whose worth he understood, depended on fast-paced e-mail, Ed's character was shaped by quiet, firm, selfless values bred into the "greatest generation." Even as Ed coped with his advancing illness he took steps to ensure PPML's future in capable hands. I'm grateful to Ed for what he built and saddened that he has passed on.
--for Norman, 1935-2002.
As one of the early subscribers to PPML shortly after its founding in 1995, I got to know Ed pretty well. I had the pleasure of meeting him the following summer in July, 1996 when we both attended the formation meeting of the National Prostate Cancer Coalition in Las Colinas, Texas. In fact, there was a close relationship between the PPML and that initial NPCC formation meeting. About 10% of the attendees were selected from the most active participants in the PPML. Each evening after the formal sessions, Ed Price, Ralph Valle, Gary Huckabay, me, and my wife Betsy gathered to discuss the days events. I hosted a dinner at a nearby restaurant for all of the "friends" who I had "met" on the PPML. I found it amazing how well you could get to know someone through their postings on PPML and additional personal e-mails. There were few "surprises."
Through my Board membership in NPCC and various other organizations, I have met many others in person over the years. I had a lot of private correspondence with Ed over the years, and sometimes helped out with PPML issues and problems, although never "officially." However, I never got to see Ed in person again. Over the last 5 years or so, my wife and I have transported my-in law's car back and forth to Florida in the Winter and Spring for them. I often mentioned to Ed, since we came within 50 miles of him while traveling on route 95 through South Carolina, that we should drop by to see him on one of our trips and renew old acquaintances in person. Alas, we never did --- and that was our loss.
Good-bye old friend, if it were not for the PPML, I would probably never have become as knowledgeable or as active in the Prostate Cancer movement as I am today.
In late 1993, when I was diagnosed with Prostate Cancer (PCa), I, and probably most men, didn't even know what a Prostate was. When I looked it up in the dictionary, all I found for a definition was "lying in a prone position" (prostrate).
The only person that I had to talk to, about PCa, was my Urologist. He was a strictly business type of personality. He showed me the Prostate on a diagram, and said he recommended surgery to remove it and the cancer.I had the surgery and was monitored, getting PSA tests for the next two years. He never explained why I was getting the tests or what the results were. He had previously said I was cured (after the surgery), so I never questioned him and he never offered an explanation.
The call came over two years later. "Your PSA is too high; we need to do another biopsy." It's hard to describe all the thoughts that went through my mind. I felt betrayed by the doctor that said I was cured; I was going to die at a relatively young age of 57.
I'd had an internet connection for a few months and decided to see if there was anyone else out there like me. I soon found the PPML, and Ed Price was the first to welcome me. He encouraged me to ask questions, I did, and I got many responses from people that were in the same boat as I. Ed, and other members of the PPML helped me learn about PCa and all the options I previously knew nothing about. My life was changed so drastically by the help I received, that, I've thought many times the PPML save my life.
I can't imagine what the last 8 years would have been like, if not for the PPML. Most likely, I would have had to continue to put my faith in the hands of the Urologist that wanted to do Radiation "because that's where it's usually at", causing further damage to my body.
All I can say is, Thank God for bringing Ed Price and the PPML into my life.
Ed and I had our differences soon after I was diagnosed when I was still angry and confused. He put me on the right track and I will always be grateful for that. He did a remarkably difficult job in managing the List very well and there must be thousands of men and their folk who will always be grateful for what he did.
Terry Herbert (in South Africa)
The PPML was my entry into Internet information-sharing about prostate cancer. It was a lifeline to someone (me) who felt like I was "going down for the third time." Ed did a great job dispensing information and keeping the listserv on track.
Ed helped me set up Cancer-esp (the ACOR cancer support group in Spanish). At present I am one of the co-owners of the lung-sclc and lung-onc and cancer-esp. When we were getting the list together I remember Ed writing and telling me about his interest in sailing and the various races he was going to or watching on TV. He sounded like such a nice man I was so sorry that I never had a chance to meet him...
Marion Winter (in Spain)
When I was diagnosed early in 1998 the PPML was the only mailing list available. I was seriously stressed out and the list was a major help in settling me down. Over the years it was always there to help us. We all owe Ed a debt of gratitude for his help and council. He will be missed.
I´ve just get acquainted of Ed Price passing. I´m deeply impressed. He was one of the first PPML who send me approval and support for the treatment I started 8 years ago with transdermal estrogens for all my prostate cancer patients. We exchange a lot of email and I still keep this precious treasure on my files. I´ll be very glad to send them to you in case you need them for the memorial section. He really deserves all this and much more.
Dr. Fernando Premoli (in Argentina)
In 1996 at age 46 I found I had advanced PCa (Gleason 8; PSA 27.x) that had just begun to spread to the bone. I was told I had a terminal disease - there was nothing to be done and to enjoy the about 2 years I had left. Stupidly, I listened to these ignorant Doctors and did nothing for 18 month - when fatigue and pain from body wide mets (PSA 413.8) brought me back for the 'hormones' which they said might offer me some temporary relief when things got bad.
When this did not improve things and their only solution was high dose of narcotics, I began to question the competency of my medical team. I was driven to find more information on my disease.
This brought me to PPML, which not only enlightened me but also pointed me other great sources of information - that have helped me turn around my care. Now 8+ years later, while I still have PCa and I am doing more aggressive things to control it, my third chemo protocol - I am in much better shape and QOL than I was before I found PPML.
THANK YOU Ed and all that make the PPML. You have added not just years to my life, but LIFE to my life.
When I first posted to the group it was on a controversial subject that even attacked Ed's treatment of choice. He was very even handed in moderating the issue and was very respectful to me. As I followed the group for six years I could always see his guiding hand. It is wonderful work he has done and I thank him for it.
Ed was a man who cared about men and their mutual disease, prostate cancer. Sometimes he was a rock of support and other times he had to don his moderator hat and chastise someone for misusing the list. I was the recipient of both kinds of words and I appreciated him for it. One thing is certain...Ed never drew attention or glory to himself. His selfless work continued until he had to step down.
In March of this year (2004) I was able to take my husband to Kiawah Island, S.C. for his last trip to the beach. Ed, who lived near by, gave us the information we needed in case there might be a medical emergency while we were there and he offered to help in any way he could. I will always remember Ed for that personal interaction during a sad time in my life.
He was a man who made a difference!
Ed Price's name is synonymous with the PPML. One could not separate one from the other. His pioneering commitment for this community work made him a formidable figure in the prostate cancer advocacy world. He will be missed, but the work of public education he started will continue thanks to his perseverance.
My condolences to Ed's family; perhaps they can take comfort in knowing that the list he founded has helped hundreds (maybe even thousands) of fellow survivors.
If you would like to contribute a statement to this page, send it to the PPML Facilitators at: